Children With Life Limiting Illness Waiver (CLLI)

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A waiver is an extra set of benefits that you could qualify for in certain cases. These benefits can help you remain in your home and community. Waivers have extra program rules and some programs may have waitlists.

The CLLI program provides Medicaid benefits in the home for children with a life limiting illness. This waiver allows you to seek curative treatment while your child is receiving palliative care.

  • Services offered with this waiver supplement the services that you already receive through regular Medicaid benefits and other federal, state, and local public programs, as well as the support that you get from your community.
  • Children who receive services through the CLLI waiver are also eligible for all Medicaid covered services except nursing facility and long-term hospital care.

See full text of current waiver - PDF 

See full text of DRAFT waiver amendment

Click here to provide public comment on waiver renewal

Who Qualifies?

Your child must meet financial and program criteria to access services under the CLLI program. You must be willing to receive services in your home or community.

Level of Care

  • Your child must be at risk of institutionalization in a hospital setting.
  • Your child must meet the Social Security Administration definition of disability.

Eligibility Group

  • Your child must be 18 years or younger.
  • Your child must have a life limiting illness certified by a physician.

Financial

  • Your child's income must be less than $2,199.00 per month and their countable resources must be less than $2,000.
  • Parent income is not considered for the child’s eligibility.

Benefits and Services

How to Apply

If your child is already enrolled in Medicaid, contact your local Single Entry Point (SEP) to start the waiver application process.

If your child is NOT yet enrolled in Medicaid you can apply now.

If you have more questions about this program please contact your local Single Entry Point Agency or the Medicaid Customer Contact Center.