Newborn blood spot screening provider responsibilities
Responsibilities of entities involved in the newborn blood spot screening process are:
Newborn blood spot screening laboratory:
Providing specimen collection blood spot cards to all hospitals and home-delivery health care providers to ensure that each Colorado newborn has had access to screening
Providing laboratory specimen processing to ensure that all newborn screens collected in the state of Colorado are tested for the disorders mandated by CRS 25-4-801 through 25-4-804 and CRS 25-4-1001 through 25-4-1006, CRS 25-4-1004.7.
Assuring time-sensitive collection of specimens and providing timely testing
Ensuring that newborn screening costs are documented and within parameters of a budget
Newborn blood spot screening reporting:
Reporting all newborn screening laboratory results to hospitals and/or home-delivery health care providers who collect blood spot specimen
Reporting abnormal newborn screening laboratory results to either newborn’s primary care provider or sub-specialists providing consultation per Colorado Newborn Screen contracts.
Providing copies of resources outlining national, evidence-based resources to guide appropriate follow-up actions by primary care providers and sub-specialists
Collecting and analyzing data on newborn screening processing and reporting to ensure timelines are consistently met. Ensuring that newborn screening costs are documented and within parameters of budget
Evaluating sensitivity and specificity of newborn screening testing, maintaining consistent processing, and incorporating quality improvement when/where necessary
Primary health care provider and facility responsibilities for newborn blood spot screening:
- Ensuring that newborn screening occurs and that results are known.
- Serving as the point -of-care between the NBS Program and the affected newborn and family
- Provide on-going testing, diagnosis and treatment.
- Communicating the results in a knowledgeable and sensitive fashion to the families