Each program is connected to national organizations:
The Birth Defects Program is part of the National Birth Defects and Prevention Network, Inc.
The Autism Project is part of the national group CADDRE, the Centers for Autism and Developmental Disabilities Research and Epidemiology.
The Muscular Dystrophy Project is part of the national group MD STARNet, Muscular Dystrophy Surveillance Tracking and Research Network.
The Fetal Alcohol Syndrome Project is part of a multistate collaborative project that has been in existence since the mid 1990's.
Colorado Responds to Children with Special Needs (CRCSN) is a group of specialized public health reporting programs, surveillance data bases and early intervention. Each program characterizes disease prevalence, and provides epidemiological information for research and preventive intervention. Programs within the group include birth defects, autism, fetal alcohol syndrome, muscular dystrophy, and other specialized databases.
Birth Defects Registry Data
Birth Defects Registry Resources
The National Birth Defects Prevention Network (NBDPN) is a group of birth defects programs and individuals working at the local, state, and national level in birth defects monitoring, research, and prevention. The Network assesses the impact of birth defects upon children, families, and health care; identifies factors that can be used to develop primary prevention strategies; and assists families and their providers in secondary disabilities prevention.
Referral to Services/Assistance
Neural Tube Defects Project
CRCSN performs public health intervention and prevention through the Neural Tube Defects (NTD) Recurrence Prevention project. CRCSN staff conducted interviews with mothers who had an affected neural tube defect pregnancy. Information is provided on the preventive benefits of folic acid in reducing risk for a recurrent neural tube defects pregnancy.
The NBDPN NTD Surveillance/Folic Acid Education Committee has compiled a list of tools and programs designed to educate health care providers about folic acid, and the information is now available on the NBDPN website.
More specific inquiries about these data or CRCSN are welcome and can be addressed via email.
To write or call:
Colorado Responds to Children with Special Needs
Colorado Department of Public Health and Environment
4300 Cherry Creek Drive South, DCEED-CRC-A3
Denver CO 80246-1530
Birth Defects Registry Staff
Margaret Ruttenber, MSPH
Program Director for CRCSN Unit which includes Birth Defects Program and Muscular Dystrophy and Fetal Alcohol Syndrome projects
Carol Stanton, MBA
Medical Information Manager
Senior Statistical Analyst:
Russel Rickard, MS
Conducts statistical analysis of CRCSN monitoring data
Responds to community concerns and release of information requests