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Health Care Program For Children With Special Needs (HCP)

 HCPlogo

Vision: All Colorado children with special health care needs will be valued, integrated and thriving.

 

Mission:  To ensure that children with special health care needs have the opportunity to grow, learn and develop to their highest individual potential. 

 

Population Served:  The Health Care Program for Children with Special Needs serves Colorado children and youth with special needs age birth to 21.

 

The Health Care Program for Children with Special Needs (HCP) is a resource for families, health care providers, and communities. HCP seeks to ensure access to integrated, family-centered, culturally competent, community-based programs and services for families with children and youth with special needs. HCP works closely with state agency partners and local public health agencies to implement three core program components:  

 

Definition of Children and Youth with Special Health Care Needs
HCP defines children and youth with special health care needs (CYSHCN) as “those who have, or are at increased risk for having, a chronic physical, developmental, behavioral or emotional condition and who also require health and related services of a type or amount beyond that required by children [and youth] generally.”
(Maternal and Child Health Bureau McPherson, et al., 1998).

 

How Can HCP help?
The Health Care Program for Children with Special Needs may help families with:

  • Finding a doctor or other health care provider
  • A developmental screening about a child’s development
  • Helpful programs and resources in the community
  • Health-related resources and information
  • Family support groups
  • Answers to questions
  • …And more!

 

Six National Maternal and Child Health Performance Measures:  MCH has identified core optimal outcomes for children and youth with special health care needs and their families.  These six national outcome measures guide program efforts:
 

  1. Families will be partners in decision-making at all levels and be satisfied with the services they receive.
  2. Children with special health care needs will receive coordinated, ongoing, comprehensive care  within a Medical Home.
  3. Children with special health care needs will have adequate  private and/or public insurance to pay for the services they need.
  4. Children will be screened early and continuously for special health needs and receive timely follow up to definitive diagnosis and clinical management.
  5. Community-based services will be organized so families can use them easily.
  6. Youth with special health care needs will have the services necessary to transition to all aspects of adult life including adult health care, work, and independence.

 

State Office:

Colorado Department of Public Health and Environment
Prevention Services Division
Health Care Program for Children with Special Needs (HCP)
PSD – HCP – A4
4300 Cherry Creek Drive South
Denver, CO 80246-1530
Phone: 303-692-2370
Main Line - Toll Free: 1-800-886-7689 ext. 2370
Fax: 303-753-9249    
E-Mail: cdphe.psdrequests@state.co.us  

 

State Staff:

Jennie Munthali, Health Care Program for Children with Special Needs Unit Manager
jennie.munthali@state.co.us
303-692-2435

 

Angela (Angie) Goodger, HCP Specialty Clinic Coordinator
angela.goodger@state.co.us
303-692-6316

 

Jane Gerberding, RN, Program Manager/Consultant, Systems Development for CSHCN
jane.gerberding@state.co.us
303-692-2024

 

Annie Whitehouse, RN, Program Manager/Consultant, HCP Care Coordination
ann.whitehouse@state.co.us
303-692-2327

 

Dale Knochenmus, HCP Data Coordinator/Help Desk
dknochenmus@state.co.us
303-692-2384

 

Laura Zuniga, HCP Specialty Clinic Data
laura.zuniga@state.co.us
303-692-2409

 

Eileen T. Forlenza, Family Leadership Initiative Director
eileen.forlenza@state.co.us
303-692-2794

 

Find your local public health agency: Local Public Health Agencies

 

Map of Colorado Counties showing HCP Care Coordination and the locations of the HCP Regional Specialty Clinics: HCP Specialty Clinics with Care Coodination pdf file

 

To contact a HCP Specialty Clinic Coordinator:

HCP Specialty Clinic Locations Type of Clinics Contact Information for Clinic
Coordinator

Grand Junction
Mesa County Health Department

Neurology and Rehabilitation

Lisa Hudson
970-248-6948
lisa.hudson@mesacounty.us

Delta
Delta County Health Department

Orthopaedic

Lisa Hudson
970-248-6948
lisa.hudson@mesacounty.us

Montrose
Montrose County Department of Health
and Human Services

Neurology

Ruth Ann Bohler
970-252-5014
rbohler@montrosecounty.net

Sterling and Fort Morgan
Northeast Colorado Health Department

Neurology, Orthopaedic and Rehabilitation

Sherri Yahn
970-522-3741 x1242
sherriy@nchd.org

Durango
San Juan Basin Health Department

Neurology and Rehabilitation

Suzanne Austin
970-335-2019
saustin@sjbhd.org

Alamosa
Alamosa County Public Health Department

Neurology and Rehabilitation

Kelli Robinson
719-587-5184
krobinson@alamosacounty.org

Pueblo
Pueblo City - County Health Department

Neurology, Orthopaedic and Rehabilitation

Ginny Hunsaker
719-583-4369
Virginia.hunsaker@co.pueblo.co.us

Rocky Ford
Otero County Public Health Department

Neurology and Rehabilitation

Ginny Hunsaker
719-583-4369
Virginia.hunsaker@co.pueblo.co.us

 

The Health Care Program for Children with Special Needs has three main components:

 

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Health Care Program for Children with Special Needs Brochure

 

HCP Care Coordination Training

 

HCP Local Systems Development

 

Early Childhood

Early Intervention (EI) Colorado

 

Mental Health

 

Insurance

 

Respite Care

 

Pediatric Home Health Care Services

 

Youth

Transition to Adult Health Care


Parent Support

 

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The Children with Special Health Care Needs (CSHCN) Data Set contains recent Colorado and national data including maternal and child health performance measures as well as other measures of interest for the CSHCN population.

 

Performance measures are determined by the federal Maternal and Child Health Bureau and by the Colorado Department of Public Health and Environment and are used to facilitate local public health planning.

 

HCP supplemental data represents additional measures selected by the Health Care Program for Children with Special Needs (HCP) at the Colorado Department of Public Health and Environment to identify areas of need for children and youth with special health care needs (CYSHCN) and are used to identify priorities for local public health planning.

 

FY2013 CYSHCN Data System Reports

 

Released Spring 2013 for FY2012

 

Released February 2012 for FY2011


Released February 2011 for FY2010

 

Released February 2010 for FY2009

 

Released February 2009 for FY2008

 

CYSHCN Menu of Reports

 

The Health Status of Colorado's Maternal and Child Health Population, June 2010 Report (Revised 02/18/2011)

 

Health Status June 2010 Report, Chapter 5 – Child Health (includes CYSHCN data)

 

Data Resource Center for Child and Adolescent Health

 

Colorado Child Health Survey

 

Health Statistics, Colorado Department of Public and Environment

 

Medical Home among Colorado Children Ages 1-14

 

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The Health Care Program for Children with Special Needs (HCP) is administered through the public health system at the Colorado Department of Public Health and Environment as part of Maternal and Child Health and the Children and Youth Branch in Prevention Services Division.

 

Maternal and Child Health emphasizes the importance of delivering primary prevention and early intervention services at multiple levels with the focus and emphasis on strategies targeting population-based and infrastructure levels in order to have the greatest impact on the MCH population.

 

Colorado state contracts are signed annually with local public health agencies to support local HCP services for children with special health care needs at the county level. Local HCP services include HCP Care Coordination, HCP Specialty Care Clinics and medical home systems development. State level activities include support for development and maintenance of comprehensive health service systems, standards/guidelines, training, data, planning and evaluation.

 

  • Federal Funding
    The Maternal and Child Health Bureau (MCHB) at the U.S. Health Resources and Services Administration (HRSA), U.S. Department of Health and Human Services (DHHS) established  federal Title V funding for children with special health care needs (CSHCN) starting in 1935 as  part of the Social Security Act.

    The MCH Block Grant provides $640 million in formula funding to state MCH programs. This is the only federal program devoted to improving the health of all women, children and families serving 33 million women and children in the U.S. 80 percent of all American children are served  by one or more maternal and child health programs.

    Colorado submits an annual grant to the Maternal and Child Health Bureau (MCHB) requesting federal funds from Title V of the Social Security Act. Maternal and Child Health (MCH) Block  Grant funds are directed toward improving the health of mothers and children including  children and youth with special needs in Colorado. The MCH Block Grant requires that one third of the grant funds be used for the population of children and youth with special needs.

    • 2012 Federal Funding for Colorado:
      • $7,178,335 from the MCH Block Grant 
        • $3.6 million goes to state level activities 
        • $3.5 million goes to local partners and programs 
          • $2,117,988 for prenatal, child, adolescent programs and services
          • $1,393,522 for programs and services for CSHCN 
             
             
  • Colorado State Funding
    Colorado state statute declares that there is a state program to support children with disabilities and thus state general funds are provided to support the Health Care Program for Children with Special Needs (HCP).

    • Colorado State Statute: CRS Title 25; Article 1.5, letter (r)
      (r) To operate and maintain a program for children with disabilities to provide and expedite provision of health care services to children who have congenital birth defects or who are the victims of burns or trauma or children who have acquired disabilities.
       
       
    • 2012 State Funding for Colorado:
      • $2,526,083 from Colorado State General Fund
        • $1,815,262 to local public health agencies for CSHCN
        • $   710,821 used for state level program activities
      • Total 2012 Federal and State funding to local public health agencies: $3,208,784

         
  • Grand Total 2012 Federal and State funding to local public health agencies for MCH/HCP programs and services = $5326,772 
     
  • For more information:

 

Early Intervention Colorado (EI)
 
The Early Intervention Colorado Program is Colorado’s system of early intervention supports and services for families who have children ages birth through two years of age. Accessing early intervention services begins when a parent, caregiver, or health provider is concerned or the child has been diagnosed with a physical or mental condition, which is associated with a high probability of developmental disability.
 
Parents and others can call 1-888-777-4041 or use the Early Intervention Colorado website to help begin the process of determining whether or not a child is eligible for early intervention.
For referral information: http://www.eicolorado.org/index.cfm?fuseaction=referral.main.
 
Local EI programs are located within twenty Community Centered Boards or “CCBs” throughout Colorado. To contact the Community Centered Board in your area click on the link below for “EI Directory”.
 
HCP Public health professionals  work closely  with local Community Centered Boards  and can help families with referrals. Additional information and links to resources are  provided below:

 

Newborn Screening Follow-up Program
The Colorado Newborn Screening Follow-up Program includes the Metabolic Screening Program and the Newborn Hearing Screening Program.  These programs are part of Maternal and Child Health at the Colorado Department of Public Health and Environment. Local public health professionals and HCP staff can assist families with having their newborn screened. 
 

 

Newborn Screening Follow-up Program
Colorado Department of Public Health and Environment
Prevention Services Division
4300 Cherry Creek Drive South
Denver, CO 80246
303-692-2370
Email: cdphe.psdrequests@state.co.us

 


Metabolic Screening Program
Newborn Metabolic Screening refers to testing newborn babies for medical conditions before they leave the hospital. Early diagnosis and treatment can result in normal growth and development and prevent or reduce the severity of serious medical problems associated with these conditions. Learn more about the Colorado Metabolic Screening Program.
 


Parent Fact Sheets:
http://newbornscreening.info/Parents/facts.html

 


Newborn Hearing Screening Program
As many as 150 babies are born in Colorado every year with a hearing loss. It is important that every newborn baby’s hearing be tested before they leave the hospital or after a home birth. Identifying hearing problems and taking action as early as possible gives every baby the best possible chance to develop normally. Learn more about the Colorado Newborn Hearing Screening Program.
 


Newborn Hearing Screening Program
Colorado Department of Public Health and Environment
Prevention Services Division
4300 Cherry Creek Drive South
Denver, CO 80246
303-692-2370 or 800-886-7689 ext 2370

 

My Baby’s Hearing (website with information for parents):
www.babyhearing.org

 


Colorado Home Intervention Program
CHIP is an early education program in Colorado providing services to children who are deaf or hard of hearing, including children who are deafblind, and their families. This unique program, offered by the Colorado School for the Deaf and the Blind (CSDB), is designed specifically to serve families with children who are deaf or hard of hearing, from newborn to age three, in the secure surroundings of their own homes.

 

Colorado School for the Deaf and the Blind:
http://www.csdb.org/Default.aspx?DN=7072bfc5-00b7-4916-90e0-df58b4498aee

 

Colorado School for the Deaf and the Blind
Colorado Home Intervention Program
33 N. Institute Street
Colorado Springs CO 80903
719-578-2100
719-578-2239 FAX
dbeams@csdb.org

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