Text Size
Increase text size
Increase text size
Banner

Autism

Autism Spectrum Disorders Projects

The regional centers of excellence for autism spectrum disorders (ASD) and other developmental disabilities were established by the Centers for Disease Control and Prevention (CDC) in 2001. These centers make up the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network and include: California, Colorado, Georgia, Maryland, North Carolina and Pennsylvania. In Colorado, CADDRE is a partnership between the Colorado Department of Public Health and Environment and JFK Partners at the University of Colorado Denver, and includes expertise in the areas of epidemiology, psychology, and developmental pediatrics.

 


The CADDRE Network is working on a study to explore possible causes and risks for developmental delays and ASD called the Study to Explore Early Development (SEED).

 

Summary
SEED stands for Study to Explore Early Development. The study will look at possible causes and risks for developmental delays and autism spectrum disorders (ASDs).

 

SEED is a ground breaking research study with the goals of learning:

 

  • What causes developmental delays in children
  • What causes ASDs
  • What are the common traits among children with ASDs
  • How genes and the environment affect child development

 

Children 2 through 5 years of age and their parents will be asked to take part in the study. Included will be families of:

 

  • Children with ASDs
  • Children with other developmental disabilities
  • Children without developmental disabilities

 

Our goal is to enroll a total of approximately 2,700 families across the six sites: California, Colorado, Georgia, Maryland, North Carolina and Pennsylvania. Families living in the Denver Metropolitan area who meet certain criteria will be asked to participate.

 

Study Activities Families who take part in the study will be asked to:

 

  • Complete questionnaires about the child’s development and the family’s medical history

  • Complete a phone interview about the pregnancy with the child and child’s development and medical history

  • Allow project staff to get copies of the biological mother’s and child’s medical records

  • Provide a blood sample and a sample of cheek cells from the biological mother, biological father, and child

  • Allow project staff to conduct a developmental evaluation of the child

  • Allow project staff to conduct a brief physical exam on the child and collect a hair sample

CDPHE Project Director
Kelly Kast, MSPH
Coordinator, Autism Projects
Colorado Department of Public Health and Environment

 

Principal Investigator
Cordelia Robinson, PhD, RN
Director, JFK Partners, University of Colorado Denver
Professor of Pediatrics, Psychiatry and Preventive Medicine
University of Colorado Denver

 

Co-Investigators
Ann Reynolds, MD
Assistant Professor in Pediatrics,
University of Colorado Denver

 

Steven Rosenberg, PhD
Associate Professor of Psychiatry
University of Colorado Denver

 

Susan Hepburn, PhD
Director of Research, JFK Partners
Assistant Professor of Psychiatry
University of Colorado Denver

 

Epidemiologist
Carolyn DiGuiseppi, MD, MPH, PhD
Professor of Epidemiology
University of Colorado Denver

 

Project Coordinator
Eric Moody, Ph.D.
Study Coordinator
JFK Partners, University of Colorado Denver

 

Medical Record Abstractors
Leovi Madera, (also Enrollment Coordinator),
Colorado Department of Public Health and Environment

 

Donna Cordova
Colorado Department of Public Health and Environment

 

Research Assistants
Betsaida Jarama
University of Colorado Denver

 

Gabriella Yates
University of Colorado Denver


 

 

The Autism and Developmental Disabilities Monitoring (ADDM) Network is a group of programs funded by the Centers for Disease Control and Prevention (CDC) to determine the number of children with ASDs in different areas around the United States. 

 

The Autism and Developmental Disabilities Monitoring (ADDM) Network is a group of programs funded by the Centers for Disease Control and Prevention (CDC) to determine the prevalence of the Autism Spectrum Disorders (ASDs) in their areas and includes: Alabama, Arizona, Arkansas, Colorado, Florida, Georgia, Maryland, Missouri, New Jersey, North Carolina, South Carolina Utah and Wisconsin. The ADDM Network’s methodology is a multiple source, records-based monitoring system. The goals of the ADDM Network are:

 

  • To determine the prevalence of ASD in the communities listed above
  • To describe the population of children with ASD

  • To compare ASD prevalence in different groups of children and different areas of the country

  • To identify changes in ASD prevalence over time

 

Colorado-ADDM is a partnership between the Colorado Department of Public Health and Environment, and JFK Partners at the University of Colorado Denver. 

 

The goal of CO-ADDM is to provide an ongoing estimate of the prevalence of ASD among children 8 years of age in the Denver Metropolitan area (Adams, Arapahoe, Broomfield, Boulder, Denver, Douglas and Jefferson counties). 

 

ADDM Network Results for the 2008 Monitoring Year

 

Please see the ADDM Network page for links to other ADDM sites.

Principal Investigator
Tista Ghosh, MD, MPH
Director, Disease Control and Environmental Epidemiology
Colorado Department of Public Health and Environment


Principal Investigator
Cordelia Robinson, PhD, RN
Director
JFK Partners, University of Colorado Denver


Project Coordinator
Kelly Kast, MSPH
Autism Project Coordinator
Colorado Department of Public Health and Environment


Abstraction Team
Jean Menconi, RN
Monitoring Specialist/Abstractor
Colorado Department of Public Health and Environment

 

Vicki Bondurant
Monitoring Specialist/Abstractor
Colorado Department of Public Health and Environment

 

Cynthia Vogel
Monitoring Specialist/Abstractor
Colorado Department of Public Health and Environment



Clinician Reviewers
Judy Reaven, PhD
Director, Autism and Developmental Disabilities Clinic
JFK Partners, University of Colorado Denver

 

Terry Hall, MS, CCC-SLP
Speech-Language Pathologist
JFK Partners, University of Colorado Denver

 
Patricia LaVesser, Ph.D., OTR
Occupational therapist
JFK Partners, University of Colorado Denver

 

Listed Alphabetically:

 

Arcs of Colorado
1-800-333-7690
www.thearcofco.org
Family advocates; website with list of statewide Arcs 

 

Autism Society of America – Pike’s Peak Chapter
918 Crown Ridge Dr.
Colorado Springs, CO 80904
719-630-7072
www.asappr.org
Supports access and opportunities for families in Southern Colorado

 

Autism Society of Boulder County
194 Mesa Ct.
Louisville, CO 80027
720-272-8231
www.autismboulder.org
Boulder County parent group providing information, educational support, and community resources

 

Autism Society of Colorado
701 S. Logan St., Ste. 103
Denver, CO 80209
720-214-0794 
www.autismcolorado.org
State-wide parent group advocating for families; provides education, referrals, and support programs 

 

Autism Society of Larimer County
6221 Treestead Ct.
Ft. Collins, CO 80528
970-377-9640
www.autismlarimer.org
Larimer County group providing information, online support groups, and local support groups

 

Colorado Cross-Disability Coalition (CCDC)
655 Broadway, Suite 775
Denver, Colorado 80203
303.839.1775 (voice)
www.ccdconline.org
Offers legal representation, advocacy, training, and youth internships

 

Colorado Department of Education – Exceptional Student Services Unit
303-866-6694
www.cde.state.co.us/cdesped/index.asp
Offers resources for disability, gifted and talented, early childhood, and English Language Learners; gives descriptions of laws and regulations affecting exceptional children

 

Colorado Developmental Disabilities Council
Stapleton Plaza Office Center
3401 Quebec St., Ste. 6009
Denver, CO 80207
www.coddc.org
Public policy advocates for people with developmental disabilities; provides information and resources

 

Early Childhood Connections
1-888-777-4041
www.earlychildhoodconnections.org
Support and services, including referrals and e-newsletter for infants, toddlers, and their families

 

El Grupo Vida
P.O. Box 16347
Denver, CO 80216
303-904-6073
www.elgrupovida.org
Spanish language support group for parents of children with disabilities

 

EMPOWER Colorado
2200 South Jasmine Street
Denver, CO 80222
1-866-213-4631
www.empowercolorado.com
Run by families; offers support, education, advocacy, and resources to families of children with developmental and mental health challenges

 

Family Voices
1-800-881-8272
www.familyvoicesco.org
Local chapter of national organization; provides information and referrals for healthcare providers; provides advocacy and support in healthcare system

 

Federation of Families for Children’s Mental Health
303-572-0302
www.coloradofederation.org
Promotes mental health for children; website has articles, advocacy information, support group links, and links for youth

 

Hands and Voices
Health Care Program for Children with Special Needs (HCP)
4300 Cherry Creek Drive South, A-4
Denver, CO 80246 
303-692-2370
Prevention Services Division HCP Program
Information, referrals to services and support including screenings, financial assistance, and support groups

 

Learning Disabilities Association of Colorado
4400 Iliff Ave.
Denver, CO 80222
303-894-0992
www.ldacolorado.com
Advocacy and education for individuals with learning disabilities

 

M.A.S.K. (Mothers with Asperger’s Syndrome Kids)
The Aspen Center for Autism
2695 S. Jersey Street
Denver. CO 80222
Resources and support group for parents of children with Asperger’s Syndrome 

 

Parent to Parent Colorado (P2P)
2200 S. Jasmine Street
Denver, CO 80222
1-877-472-7201
www.p2p-co.org
Quarterly newsletter, internet discussion groups, support group referrals, 1-1 parent matching